I sponsor children with several different organizations. One of them, Common Hope, is striving to make changes for children living in Guatemala. It provides funds for education, health care, food, and other needs that a family may have. They are attempting to obtain 21 sponsorships by June 21, the start of summer, for children in San Miguel Milpas Altas. These children are in fifth and sixth grade, and many of them are already more educated than their parents. Many children are pulled out of school to assist in farm work and to help the family financially. There is also the fact that currently there is no high school in San Miguel and children seeking a high school education must go to Antigua or Guatemala City. This is something that Common Hope is trying to change. These children desperately want an education, something we all take for granted. If you have the ability, please consider offering one of these children the gift of hope and knowledge. Spark Hope!

I am frustrated by people who feel that they have a superior position to me and can judge my actions. I fully admit that I have made mistakes, that I have fallen more than I have walked, that I flat out screw up more than I would like to admit. But I am my own worst critic. I do not need others to point out my flaws as I can promise I am fully aware of each and every single one of them, and have ached over it for longer than imaginable. I am at heart a perfectionist, and I detest the imperfections and failures in my life. I am horridly embarrassed by some of the behaviors that I engaged in during the cycles of my bipolar disorder. Could I control it? No. Could I understand the ramifications of my actions? Not really. Do I need to be reminded of these over and over? No. I am healing, I am in the process of getting my feet under me and becoming the person I want to be. I am making changes in my life based on what is best for me. I need people who believe in me, who can understand that someone so intelligent can do something so stupid because of a scrambled brain, who are willing to look past ALL of the medical issues and see me. I am not my mistakes.

It has been far too long since I took the time to write here. I would have to look back through my posts to figure out where I last left off, a task I do not wish to undertake tonight. So for now I will just make a guess as to where to begin.
In good news, I have been volunteering at one of the local elementary schools. I work with kindergarten and first grade students who are struggling with reading and writing. It is awesome to be back in a school setting and feeling productive. The kids are wonderful and so open to differences - we talked about why I use a wheelchair and the kids got to ask questions and then they were good with it. It was just a part of me, a tool I used. The bad news is that I scheduled volunteering for my worst time of day and have missed at least double the days I have gone. So now we are trying to switch to afternoons, which work better for me, and I am just waiting on the local bus company to set up transportation. Either way I am exhausted by the time I am done and I am usually down and out for the day, and the next. But it is so worth it to feel that meaning in my life again, to be in a school setting, to be working with children.
Medically I have been neglectful of my own care. I have not set up a neurology appointment in months. It is hard to coordinate with my Dad's schedule (since I can not drive) but not impossible. I have ignored Gollum, the pituitary microadenoma, for over a year and probably need to get in to see an endocrinologist about him. I think it is time to scan and check his size as he is causing more problems. The muscle weakness is continuing its progression. My arms are growing weaker and I am afraid that soon I will no longer be able to push my own wheelchair. It does not help that Gollum and some of my medications have caused me to gain weight making more to push. My name finally came up for an appointment at the Mayo Clinic after two years of waiting, but I could not accept the appointment. I just plain can not afford the expenses of the trip - the airfare, the shuttles, food, the hotel for up to 7 business days. I also can not imagine trying to wheel myself around that massive campus and to obtain meals and such. I am back on the waiting list in the hopes that when my name comes up again I will be in a better position to go.
I do have an appointment with a psychiatrist in a month. We knew from my genetic abnormalities found when testing for mitochondrial disease that I am predisposed to bipolar disorder and early onset alzheimer's. Well, my brain decided that it wasn't screwed up quite enough with all of the issues it has and it went and developed bipolar disorder. I am taking a big risk sharing that here, because people have stereotypes of what someone with a mental illness is like. There is still a huge stigma involving these disorders even though they are as real and physical as any other issue I may have. I have started medication for the bipolar disorder, and although I think we will need to adjust it I have hope that everything will be well controlled. I am still the same person that I was before someone put a name to my scrambled brain, still the same daughter and sister and aunt and friend, the same writer and wanna be artist and photographer, the same passionate idealist and child advocate and teacher. I am me.
I plan on writing more on here again, but I am very tired after going to Target today to pick up greeting cards and a pair of pajama shorts. All I had were long pants and it has been warm lately. I am so thankful that winter is finally over and spring is here!! I love sleeping with the windows open, being able to go outside without layers, and the abundance of new life. It reminds me that in spite of everything, I am still unbelievably blessed and wealthy beyond measure!

It has been so long since I wrote anything here, and to try and catch everything up in one post would be a daunting exercise in futility. Instead I am going to just write from where I am today and fill in missing events as needed.

So today was my first day volunteering at a local elementary school. I help in a Kindy class and a 1st grade class during a 3 hour time period 3 times per week. If today was any indication, I will then come home and sleep the rest of the day :) I loved being back around kids and being in a school setting. It seems weird to me that all of the children walk and talk and there are no diapers to change. I was amazed by what the new mandated curriculum expects kindy kids to learn when it is not developmentally appropriate.

At the end of the day I did a sudden notice presentation to the kindy class on "this is me, this is my wheelchair". I tried to explain things on their level and the teacher helped me. We talked about how I can do anything they can do,I just may do it differently. Their questions were so innocent and inquisitive and uninhibited. I got busted for not having my feet strapped in by an observant little boy who noticed the buckled on the foot rests and asked about them. :) I had to confess that I was supposed to use them to hold my feet straight and my legs positioned properly but that it is uncomfortable and so I undid them. Hands down best question goes to the boy who asked "How do you go swimming in a wheelchair because the chair won't float it will sink and you will be stuck under water?" We then discussed how I can get out of my chair and walk a little ways with help and that no one would strap me in my wheelchair and then push me over the edge of the pool. :)