And God Laughs
I told God my plans and He laughed. So now I am living, laughing, and loving according to His Plans.

Year In Review: The Audiovisuals

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Favorite Books Read This Year:
**This is hard because my books are all neatly on my 3 bookcases at home and I am not, and I read well over 100 books per year easily.**

* Sarah's Key
* Gimp
* The Help
* Handle With Care
* Come Back
* Mountains Beyond Mountains
* Into The Wild
* Moving Violations
* One and the Same
* The Horse Boy
* The Street of a Thousand Blossoms
* Dreaming Water
* They Cage the Animals at Night
*All Rivers Run to The Sea: Memoirs
*The Disappearance of Childhood
* No Matter How Loud I Shout
* Three Little Words
* Snow Flower and the Secret Fan
* In the Absence of Angels
* The Zookeepers Wife
* Still Alice

Favorite Albums
* Love on the Inside- Sugarland
* Live on the Inside- Sugarland
* Green and Gold - Sugarland
* Emily West EP
* Lady Antebellum- Lady Antebellum
* Symphony- Sarah Brightman
* RENT Broadway Soundtrack

Favorite Songs
* I Will Stand Back Up- Sugarland
* Come On Get Higher- Sugarland
* One Day You Will- Lady Antebellum
* Praise You In This Storm- Casting Crowns
* Does Anybody Hear Her- Casting Crowns
* Defying Gravity- Wicked Soundtrack
* Will I - RENT
* La Vie Boheme - Rent
* I Run To You- Lady Antebellum
* Calling All Angels
* Her Diamonds - Rob Thomas
* I'm Alive - Kenny Chesney
* Circle- Sugarland
* All The Broken Pieces- Matthew West
* Vapor- Little Big Town
* Rocks in Your Shoes - Emily West
* She's With Me- Collin Raye

Movies Viewed This Year
* RENT The Live Broadway Production
*Sunshine Cleaning 
* The Cake Eaters

As must be obvious, I am much more of a book person than a movie person, and I tolerate television when I have nothing else available to provide entertainment. The shows that I watch are virtually all educational and there is only one fictional series I can think of that I watch on a regular basis. My favorites are more along the lines of National Geographic specials and Discovery Channel. In movies I prefer Documentaries to most mainstream movies, and I know I watched a few good ones this past year but I am blanking on their titles. Oddly enough I could keep listing books for a good while longer, even without access to my bookcases. :) Thus the year in multimedia review.

Ah, well, we have OTHER things in common. ;) Perhaps it is evidence of our generation gap. Anyway, I read non-fiction almost exclusively. I watch almost no tv, too, and at that, mostly PBS cooking shows (we do not have cable. Yes, on purpose.) I do see a few movies a year, mostly through rental and I want to be entertained - not horrified, frightened or have my libido enraged. (Read, I don't see a lot of new releases.) Barbara

Job 8:21

"He will fill your mouth with laughter and your lips with shouts of joy."

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Wild Olive

Wild Olive

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Creative Victory

This is Me

I am a thirty year old enigma who has defied every expectation ever placed upon me and refused every definition created for me. My greatest passion in life is to make a difference in the lives of children with special needs and their families. As a special education teacher I broke all of the unwritten rules to make sure that my kids received the services they needed and had a right to receive. I have never been so proud to be reprimanded before in my life. Now, due to unpredictable twists in life, I am learning first hand what life is like when you rely upon a wheelchair for mobility. I am a medical puzzle with the pieces slowly being identified and put together, and my medical bills alone could fund a small nation. It takes a village to keep me alive. :) However, I am not defined by the genetic misspellings. I am a teacher, a daughter, an aunt, a friend, a dreamer, a reader, an amateur photographer, a writer, an advocate, a star gazer, a world changer. I am stubborn, situationally shy, quick to use humor and wit to make others laugh or cope with a situation, sarcastic, fiercely independent, giving, compassionate (sometimes to a fault), protective of those I love, defiant of arbitrary boundaries, perfectionistic, self conscious, self assured (yes you can be both!), articulate and occasionally dramatic. And that is just what I could fit in two sentences! :)

Who's On First, What's On Second, I Don't Know! (Third Base!!)*

Simple Vocabulary Definitions for those who may not speak fluent medical :)

Undiagnosed Progressive Neurological Disorder- This is the diagnosis that is believed to make everything else fit together. It explains my frequent infections, my muscle weakness and dystonia, my dysautonomia, my cardiac issues, my inability to regulate blood pressure, my dysphagia, my ataxia, my severe fatigue, my extreme nausea, my gastrointestinal dysmotility and IBS like syndrome, my unbelievable migraines, my sensory changes in my arms and legs, my vision issues, my hearing loss (so much for blaming medication), and so much more. Going back to infancy and childhood, this would explain the severe apnea, the significantly delayed motor skills, the reason why I could never keep up with my peers in physical activities, the neurogenic bladder, the malfunctioning thyroid, and my frequent illnesses and vomiting. This is the diagnosis now being used since the DNA testing for Mitochondrial Disease came back odd and I can not afford the expenses of a workup at the Mayo Clinic. We are treating symptomatically.

Pan-Dysautonomia- "Pan" means that it impacts many different systems of my body, "dysautonomia" is a failure of my autonomic nervous system or the part of my brain that does all of the automatic things that do not require conscious thought like telling your heart to beat, regulating your blood pressure, adjusting your body temperature, maintaining balance in space, digesting food, hunger and thirst, etc. It is believed that I have had this from birth based upon my history of symptoms, including severe life threatening apnea as an infant, but the cause remains elusive at this time

Dystonia- abnormal muscle tone and spasticity, including painful spasms, that primarily impacts my feet and lower legs and is now starting to be a problem in my back

Ataxia- difficulty maintaining balance and coordinating/executing movements

Dysphagia- difficulty swallowing due to any number of causes including muscle weakness and poor muscle coordination

Adipsia- the absence of a sense of thirst

Other Medical Issues- Lupus Anticoagulant (autoimmune disease that causes me to tend to form blood clots and has already caused two deep vein blood clots and one mild stroke), Migraines, unknown connective tissue disorder, abnormal gastric motility, allergies, history of v-tach and severe sinus tachycardia, changes to my echocardiagram that include leaking valves and a new murmur, low blood pressure, ataxia, untreated PFO (small hole in my heart that increases the risk of stroke), chronic lymphadema in my left arm, Hashimoto's Thyroiditis, Narcolepsy/Idiopathic CNS Hypersomnolance (believed to be a result of the dysautonomia and my brain's inability to regulate the sleep/wake cycle), mild hearing loss, malformed optic nerves, polycystic ovarian syndrome, pernicious anemia, vitamin deficiencies

* Title comes from an old Abbot and Costello routine that I chose to memorize in 6th grade and absolutely love.