And God Laughs
I told God my plans and He laughed. So now I am living, laughing, and loving according to His Plans.

I Have a Dream

I could never write a speech as eloquent, as rich in truth, as powerful as those written by Dr Martin Luther King Jr. He led the way to changing our society and he did it without violence or hatred.
In honor of the day set aside to honor him I wanted to write my dreams for our country and our world, the call to action I would set forth for society were I in such a position to be heard.

I dream of the day when no child dies of the effects of poverty. A day when every child will have enough to eat, clean water to drink, and homes that shelter during the storms.

I dream of a country where health care is a right and not a privilege. Where we recognize that as part of our constitutional rights of life, liberty, and the pursuit of happiness we have a right to access medical treatments that will extend our lives, give us liberty, and allow us the opportunity to pursue happiness.

I dream of the day when discrimination based upon disability is vanquished. The day when society will not observe an individual with a disability and automatically come to conclusions about their quality of life, their abilities, and their value. A day when we will be seen for the people that we are and not the disabilities that we happen to have.

I dream of a day when all children from all socioeconomic levels will have equal access to quality education. When children of every race, every nationality, every religion, every ability will sit together in our classrooms and be engaged and challenged by teachers who are supported and properly trained.

I dream of a day when children can just be children. When they will be safe from becoming child soldiers, when they will be protected from the gangs that attempt to recruit them, when they will have the mentors and parental guidance they desperately need. A day when all children can play together without fear.

I dream of a day when all religions learn to respect one another, to honor each other instead of committing horrible atrocities in the name of their God. The day when the unifying message of God is Love is given life and breath.

I dream of a better tomorrow, of a world where everyone has enough, of the end of racism and sexism and ableism, of the innocence of childhood, of peace, of coming together instead of tearing apart. I have a dream.

Such a lovely heartfelt post! ...
you have an award at my blog...

Job 8:21

"He will fill your mouth with laughter and your lips with shouts of joy."

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Wild Olive

Wild Olive

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Creative Victory

This is Me

I am a thirty year old enigma who has defied every expectation ever placed upon me and refused every definition created for me. My greatest passion in life is to make a difference in the lives of children with special needs and their families. As a special education teacher I broke all of the unwritten rules to make sure that my kids received the services they needed and had a right to receive. I have never been so proud to be reprimanded before in my life. Now, due to unpredictable twists in life, I am learning first hand what life is like when you rely upon a wheelchair for mobility. I am a medical puzzle with the pieces slowly being identified and put together, and my medical bills alone could fund a small nation. It takes a village to keep me alive. :) However, I am not defined by the genetic misspellings. I am a teacher, a daughter, an aunt, a friend, a dreamer, a reader, an amateur photographer, a writer, an advocate, a star gazer, a world changer. I am stubborn, situationally shy, quick to use humor and wit to make others laugh or cope with a situation, sarcastic, fiercely independent, giving, compassionate (sometimes to a fault), protective of those I love, defiant of arbitrary boundaries, perfectionistic, self conscious, self assured (yes you can be both!), articulate and occasionally dramatic. And that is just what I could fit in two sentences! :)

Who's On First, What's On Second, I Don't Know! (Third Base!!)*

Simple Vocabulary Definitions for those who may not speak fluent medical :)

Undiagnosed Progressive Neurological Disorder- This is the diagnosis that is believed to make everything else fit together. It explains my frequent infections, my muscle weakness and dystonia, my dysautonomia, my cardiac issues, my inability to regulate blood pressure, my dysphagia, my ataxia, my severe fatigue, my extreme nausea, my gastrointestinal dysmotility and IBS like syndrome, my unbelievable migraines, my sensory changes in my arms and legs, my vision issues, my hearing loss (so much for blaming medication), and so much more. Going back to infancy and childhood, this would explain the severe apnea, the significantly delayed motor skills, the reason why I could never keep up with my peers in physical activities, the neurogenic bladder, the malfunctioning thyroid, and my frequent illnesses and vomiting. This is the diagnosis now being used since the DNA testing for Mitochondrial Disease came back odd and I can not afford the expenses of a workup at the Mayo Clinic. We are treating symptomatically.

Pan-Dysautonomia- "Pan" means that it impacts many different systems of my body, "dysautonomia" is a failure of my autonomic nervous system or the part of my brain that does all of the automatic things that do not require conscious thought like telling your heart to beat, regulating your blood pressure, adjusting your body temperature, maintaining balance in space, digesting food, hunger and thirst, etc. It is believed that I have had this from birth based upon my history of symptoms, including severe life threatening apnea as an infant, but the cause remains elusive at this time

Dystonia- abnormal muscle tone and spasticity, including painful spasms, that primarily impacts my feet and lower legs and is now starting to be a problem in my back

Ataxia- difficulty maintaining balance and coordinating/executing movements

Dysphagia- difficulty swallowing due to any number of causes including muscle weakness and poor muscle coordination

Adipsia- the absence of a sense of thirst

Other Medical Issues- Lupus Anticoagulant (autoimmune disease that causes me to tend to form blood clots and has already caused two deep vein blood clots and one mild stroke), Migraines, unknown connective tissue disorder, abnormal gastric motility, allergies, history of v-tach and severe sinus tachycardia, changes to my echocardiagram that include leaking valves and a new murmur, low blood pressure, ataxia, untreated PFO (small hole in my heart that increases the risk of stroke), chronic lymphadema in my left arm, Hashimoto's Thyroiditis, Narcolepsy/Idiopathic CNS Hypersomnolance (believed to be a result of the dysautonomia and my brain's inability to regulate the sleep/wake cycle), mild hearing loss, malformed optic nerves, polycystic ovarian syndrome, pernicious anemia, vitamin deficiencies

* Title comes from an old Abbot and Costello routine that I chose to memorize in 6th grade and absolutely love.